Caring for Your Parents: Coping with Dementia

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By Lauren Maxwell
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ANCHORAGE - Imagine getting news from your doctor that you are suffering from a type of brain condition called dementia that is only likely to get worse. Alzheimer’s and other diseases can cause dementia that comes on gradually, but the diagnosis doesn’t have to stop people in their tracks.

Tim Neale is proof that people with early stage dementia can remain active, although for most of his life he was a man who was hard to keep pace with. In fact, to say Neale is an athlete is an understatement. Neale has climbed Mt. McKinley, raced bikes and motorcycles and run the Mt. Marathon race in Seward 30 times.

But three years ago Neale hung up his racing shoes. He was diagnosed with Parkinson’s disease and a form of dementia that sometimes goes with it. He said he has watched both his body and his brain slow down.

“Anything I do takes about twice as long to do as it used to and part of it is that I can daydream,” he said.

But while the disease may have slowed him down it hasn’t stopped him. He did have to hang up the car keys as his disease progressed, but he gets out daily with a caretaker. A favorite coffee shop on Muldoon offers a view of the peaks he used to climb as well as see friends and socialize. He tries to live what he calls a “normal” life.

Neale is the first to say he can’t do everything that he used to do, but some things are still a priority.
Exercise is a big one. He may not be as strong as he once was, but he is just as committed. He makes it to the gym almost every day.

Neale has advice for others: It’s do what is important to you now because the future is uncertain. And when things do change, try to accept them.

“You can’t always or maybe never do the things you used to do,” said Neale,” but that doesn’t mean that you can't do some new things.”

Tim said he’s living life in spite of his disease, and appreciating it every day. If you’d like more information about dementia, including resources for people experiencing it, text KTVAAGING TO 28201.

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Susan Nielsen said on Friday, Nov 16 at 11:44 AM

My husband has been living with ongoing dementia after not being given oxygen after surgery, it is difficult, but he has learned to do what he can on a daily basis, he still plans but has learned to accept that some of the old plans won't come to fruition. We have learned to find humor in tragedy, he can still walk 6 miles with my service dog, and with the help of oxygen nightly he overall is doing better while still going down hill. Dementia it comes from so many areas, not just Alzheimers, but it has the same end place.

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Celeste Adkins said on Sunday, Nov 18 at 8:22 AM

My dad has dementia, but has not been diagnosed with it properly. After he threatened to shoot his family, we all knew he was not in his right mind. We tried to get him help, but instead he fled taking some savings that both he and my mom have saved over the years. We pray he is okay and that God will watch over him wherever he is. It is hard to accept this in life, knowing life will never be the same in the family again. It is hard and sad on the family members when they see their loved one go through this, in hopes the Alaska Native Health will do more to help those in rural Alaska as well as those in urban areas. I pray for my mom, for her loss and I pray for my dad, for his safety. May God watch over both of them and keep them safe...

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