Life as He Knows It – One Young Man’s Life with Neurofibromatosis
For Ethan Fleetwood, “normal” life is anything but
When they returned home from Chicago two weeks later, it was just the beginning.
Ethan faces six months of swelling and recovery only to go back and do it all over again.
This was the first major surgery of his young life. Likely it's the first of many.
But the one thing Ethan and his family will certainly count on: support from their community.
His friends' families already have plans for fundraisers and donations.
“Hopefully it won't grow back, but there's really no guarantee though,” Lela said.
Because of this Ethan’s childhood has a chance to shape up, but how others define "normal life" may not even matter to Ethan.
Because in his mind, life already is normal.
Now we do want to point out that cancer occurs in a very small percentage of neurofibromatosis cases.
Ethan's doctors screen him regularly for malignant tumors and so far, so good.
The other part of what makes this so difficult for Ethan’s family is the financial end.
Lela told us the medical bills from their two-week stay in Chicago total just over $100,000.
Medical insurance covered most of it, but the Fleetwoods are still on the hook for $28,000.
She says families in these kinds of situations understand the extremely high costs and deal with them. It's just a part of their lives.
We wish Ethan and his family all the best.
If you would like to consider helping out Ethan's family you can make a donation to the Key Bank account # 720153000925.
For more about Ethan visit http://ethanfleetwood.wordpress.com/neurofibromatosis.
And the Eagle River Elks Lodge #2682 presents an Evening Extravaganza with Ethan at Chugiak Elementary on April 25, 2012 from 6:30 to 8:30 p.m. Parking and admittance is free. All ages are encouraged to attend.
Activities will include:
All funds collected will be passed directly on to Ethan's family. If you are interested in donating an auction item or volunteering your time please contact Jennifer Carlson at 742-3400 or firstname.lastname@example.org, or Austin Schwartz at email@example.com.